“…an elusive cause of blindness in young, otherwise healthy individuals…”
“… associated with immunologic phenomena whose mechanisms remain unknown…”
“…several treatments have been proposed… none of these treatments is of proven benefit…”
“…no drugs have been found to be effective… “
These are just a few random sentences from medical literature about Eales Disease (ED). Having to deal with it myself, I find it frustrating that in spite of enormous amounts of medical research on the eye in general, or on various specific aspects of ED in particular, there is, I think, little hope for any immediate breakthrough, and not much amassed information focusing specifically on ED is easily available for the common person. This site is my small, non-professional contribution to address this gap.
This site aims at the following objectives:
- To create awareness, educate, and to provide basic information about ED.
- To concentrate efforts, information and observations from as many people with ED as interested to participate. The cause and treatment for ED are not yet discovered. I think that they may reside in a combination of factors that cannot be identified on singular or independent cases. Hence the proposal to focus together the information and experiences we have.
- To create a resource comprising the latest ED-related work and research. As a patient, not a health professional, I hope that in this way I can contribute a little to paving a path for health professionals who are dedicated to studying and healing ED.