more than meets the eye on Eales Disease

You are not alone

It is a rare disease, but we are building a community where we can share the experience and try to find solutions to improve our health.

More
Eales vs Tuberculous Vasculitis

Latest news

Latest news, articles, research papers on Eales Disease and other related diseases.

Eales vs Tuberculous Vasculitis

Resources

All resources available, gathered in one place

More
Eales vs Tuberculous Vasculitis

Cases

Cases of patients diagnosed with Eales Disease

More
Eales vs Tuberculous Vasculitis

“…an elusive cause of blindness in young, otherwise healthy individuals…”

“… associated with immunologic phenomena whose mechanisms remain unknown…”

“…several treatments have been proposed… none of these treatments is of proven benefit…”

“…no drugs have been found to be effective… “

These are just a few random sentences from medical literature about Eales Disease (ED).  Having to deal with it myself, I find it frustrating that in spite of enormous amounts of medical research on the eye in general, or on various specific aspects of ED in particular, there is, I think, little hope for any immediate breakthrough, and not much amassed information focusing specifically on ED is easily available for the common person.  This site is my small, non-professional contribution to address this gap.

This site aims at the following objectives in dealing with Eales Disease:

  • To create awareness, educate, and to provide basic information about ED.
  • To concentrate efforts, information and observations from as many people with ED as interested to participate.  The cause and treatment for ED are not yet discovered. I think that they may reside in a combination of factors that cannot be identified on singular or independent cases.  Hence the proposal to focus together the information and experiences we have.
  • To create a resource comprising the latest ED-related work and research.  As a patient, not a health professional, I hope that in this way I can contribute a little to paving a path for health professionals who are dedicated to studying and healing ED.

Latest Blog

Eales vs Tuberculous Vasculitis

+Resources

24th Jun 2014

More

Eales vs Tuberculous Vasculitis

None of the recent studies could differentiate Eales’ disease from tuberculous vasculitis, and also several studies, especially from India where the disease is prevalent, reported the strong association between this...

Case-USA-1993-Marilyn

+Case Studies

21st Apr 2013

More

Case-USA-1993-Marilyn

Hi, I was diagnosed with peripheral proliferative retinopathy when I was 39. I don’t have diabetes or high blood pressure and I was tested from head to toe. My only...

Eye fundus photograph of Eales disease with active periphlebitis

+Resources

19th Feb 2013

More

Eales disease – current concepts in diagnosis and management

Eales disease – current concepts in diagnosis and management A recent article on Eales Disease, received courtesy of Prof. Dr. Jyotirmay Biswas, Director of Uveitis and Ocular Pathology departments - Sankara Nethralaya PDF article: Eales’...

Case-IL-1998-ED-Dor

+Case Studies

16th Dec 2012

More

Case-IL-1998-ED-Dor

I am Israeli, born in 1952. Male, white, with origins in Europe. Diagnosed with Glaucoma in 1998, a few years later it was clear that the more critical problem in...

Case-NL-1983-ED-FH

+Case Studies

25th Jul 2012

More

Case-NL-1983-ED-FH

Hallo, In 1983, 31 years old, I was diagnosed Eales disease after some floaters appeared in my left eye. I had several (xenon)laser photocoagulation first in my left eye and...

Case-NL-1998

+Case Studies

07th Jun 2012

More

Case-NL-1998

I want to now if there are people in the Netherland (Holland) who has the same illness. Mine Mother had the illness also, and for 14 years ago i have...

Mycobacterial load in the vitreous of patients

+Resources

14th May 2012

More

Mycobacterial load in the vitreous of patients

Purpose: To report mycobacterial load in the vitreous of patients labeled as having Eales’ disease. Methods: Eighty-eight patients were prospectively enrolled into 3 groups: 28 patients with so-called Eales’ disease...

Bionic eye for 2013

+Resources

10th Apr 2011

More

Bionic eye for 2013

Bionic vision gets $2.5m boost (01 May 2012) Major advances to bionic eye (01 April 2011)

Case-IN-2001-ED-Doctor

+Case Studies

11th Feb 2011

More

Case-IN-2001-ED-Doctor

India/2001/Eales Disease/Dr.C.S.T Blind doctor set to practice medicine DNIS News Network – Dr Toppo, who became the first blind person in the country to successfully complete his medical course, is...

Powerpoint Presentation

+About ED

13th Dec 2010

More

Powerpoint Presentation

Eales Disease